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ALK Positive UK produce and collect information via leaflets and booklets for use by patients of ALK-positive lung cancer, healthcare professionals and researchers in the field. 

Below you will find our resources available for download. If you wish to order hard copies of certain documents, please get in touch with us.

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A Guide to complaining to the NHS

A guide to complaining about substandard treatment in the NHS

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Good Practice
What to Ask

The purpose of this document is to empower patients to be involved in and better informed about their treatment

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Brain Mets
& Driving

This document has been produced by our DVLA panel to answer many questions about brain mets and driving.

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March 2021

The second newsletter from ALK Positive UK.

ALK Knowledge

A useful Facebook resource.

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About Chemotherapy

NHS guidance including managing side effects.

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An easy-to-understand  guide to biomarker testing.

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A series of short videos about pleural effusion

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Mental Health infographic

ALK+ Lung Cancer UK's infographic on mental health.

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Molecular Mechanisms and Treatment Strategies

A guide to molecular mechanisms and treatment strategies aimed at a general audience.

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Travel Advice

Advice on travel and going on holiday.  List of Insurers on p32

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Gift Aid Declaration

This form has been produced by ALK Positive UK to support fundraising activities.

ALK+ Infographic

This infographic has been produced by ALK Positive UK..


Research Library of the ALK Positive USA Group

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Clinical Trial

Clinical trials currently recruiting in UK

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Do Not
Resuscitate orders

This guidance has been produced by the Charity's Medical & Scientific Panel

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Fertility and Cancer

An advice leaflet from NHS Scotland about fertility and cancer.

The Conference

All the videos of 11 speakers at the UK Conference plus what the delegates had to say

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February 2020

The first newsletter from ALK Positive UK.

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Cancer Diets
Myths & More

Advice from the Association of British Dietitians

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Need for National Guidelines

This report uses data provided by patients to argue for national guidelines in treatment and management

Longitudinal Study

Members are asked to complete the study being carried out by ALK Positive Inc 

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Joint report with the EGFR group

This study examines the value and role of oncogene-focussed patient groups

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Ruth Strauss Foundation

Access Family Support Services from Ruth Strauss Foundation.

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Useful Booklet produced by Roy Castle Lung Cancer Foundation.

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This brochure has been produced by ALK Positive 
UK for fundraising activities.

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Sponsorship Form

This form has been produced by ALK Positive UK to support fundraising activities.

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Medical Info

This form has been produced by ALK Positive UK to capture important medical information.

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ALK+ Summit

Summary of Alk+ Summit 2020

Denver USA.

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ALK+ Patient Booklet

This booklet has been produced by ALK Positive UK for patients, their families and friends.

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Corporate Brochure

All about the ALK Positive UK charity - who we are and what we do

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Side Effects
of certain TKIs

Side Effects reported by members of the ALK Positive UK Group

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March 2022

The third Newsletter from ALK Positive UK

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An Overview

A brief overview of ALK positive lung cancer from a USA site

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The RAMON Study

Radical Management of Advanced NSCLC - report from our Medical & Scientific Advisory Panel.

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See Through  the Symptoms

A campaign targeted at primary health care providers

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Advice on obtaining a second opinion.

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ALK Positive UK Leaflet

This leaflet gives an overview of our charity and is available in various languages.

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Roy Castle
Living with LC

Supporting you to make the most of your health and wellbeing.

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Some ideas of how you can look after your physical and mental health

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This leaflet has been produced by ALK Positive Lung Cancer (UK) to assist patients & oncologists.


This template has been produced by ALK Positive UK for will supplementation.

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Clinical Trials
in UK

Clinical trials currently recruiting in UK

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