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bringing   Hope

Changing Perceptions of Lung Cancer


A registered charity established by patients, their families and friends.

ALK-positive lung cancer is a relatively rare form of lung cancer caused by the abnormal rearrangement of the anaplastic lymphoma kinase gene. The vast majority of patients are non-smokers, about half are under 50 years of age when diagnosed (some are much younger), and the majority are female. Most patients are diagnosed at Stage 4.

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Our Vision

People with ALK-positive lung cancer in the UK will thrive and live a long and fulfilling life unhindered by their disease.

Our Mission


   ALK Positive Lung Cancer (UK) exists to


  • Support the ALK+ lung cancer patient community.

  • Empower people affected by ALK-positive lung cancer.

  • Advocate for improvements in the diagnosis, treatment and care of ALK-positive lung cancer across the UK.

  • Represent the voice of the ALK-positive lung cancer community.

UK's only ALK-positive lung cancer charity that


We provide a forum where patients and their families can exchange information about their diagnosis and treatment, and where they can give and receive mutual support.​​


We are a source of information for patients so that they are better informed about their condition and, as informed patients, they are empowered to ensure that their health care providers employ best practice.


We advocate on behalf of  patients to ensure that they receive a high level of care wherever they live in the UK and to promote improved patient outcomes. We campaign for early diagnosis so that more patients can be cured.

We are recognised by NICE (National Institute for Health and Care Excellence) as an organisation to be consulted on new ALK-positive treatments. We work collaboratively with other relevant organisations and have undertaken several joint projects. We attend conferences of lung cancer oncologists and nurses where we promote the services that we can offer their patients. 

Our Values


  • We are welcoming in our approach and put the needs and interests of patients with ALK-positive lung cancer and their families first, treating them with the respect and empathy that they deserve.

  • We are passionate about our work – our passion is driven by a deep personal connection to ALK-positive lung cancer which means we are highly committed and determined.

  • We always act with professionalism and integrity and our activities are based on the best available evidence.

The benefits of joining a support group

If you are a patient, friend or family member looking for more information or would like to be added to our mailing list,  please provide your details below and we'll be in touch, or call 07975623515.
We welcome enquiries from healthcare professionals.

Thanks for submitting!

If you are a patient, family or friend and would like to join our Support Group, please click

This is a private Facebook support group of over 600 members in the UK and where you will be able to receive support from fellow patients, receive answers to your questions and exchange experiences.

Who we are and what our goals are

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Find out about ALK+ lung cancer

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Useful documents, information and links

Learn what the charity does and how we can support your patients


Anyone with lungs can get lung cancer.

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