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What We Do
Our purpose is to extend the overall survival and quality of life of ALK-positive lung cancer patients across the UK.
Our vision is that people with ALK-positive lung cancer in the UK will thrive and live a long and fulfilling life unhindered by their disease
To achieve our vision, we
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Support patients and their families
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Empower patients so that they can have meaningful conversations with their healthcare providers
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Advocate for best care throughout the UK
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Campaign for early diagnosis
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Raise awareness of lung cancer in non-smokers
Support
Visit our Patient Support page to see the wide range of support that we offer.
Empower
We maintain this website that provides a wealth of information.
We publish advice booklets and leaflets Our Publications.
Each year, we have a weekend conference, free to patients plus one, where they hear from and question ALK+ experts - Conference.
We produce ASK the Expert videos.
Advocate
We carry out surveys of our members to gather real-world data on all aspects of their diagnosis, treatment and care.
We attended conferences and meetings of lung cancer oncologists and nurses where we tell them about the support that we can provide for their patients.
We publish reports on best practice.
Our Protocol for the frequency of head MRI scans.
Download and print a summary of what we do
Our core values
ALK Positive UK is committed to producing reliable, accurate and up to date content reflecting the best available research evidence, and best clinical practice. We aim to provide unbiased information free from any commercial conflicts of interest.
We are welcoming in our approach and put the needs and interests of patients with ALK-positive lung cancer and their families first, treating them with the respect and empathy that they deserve.
We are passionate about our work – our passion is driven by a deep personal connection to ALK-positive lung cancer which means we are highly committed
and determined.
We always act with professionalism and integrity and our activities are based on the best available evidence.
