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What We Do

Our purpose is to extend the overall survival and quality of life of ALK-positive lung cancer patients across the UK.

Our vision is that people with ALK-positive lung cancer in the UK will thrive and live a long and fulfilling life unhindered by their disease

   To achieve our vision, we

  • Support patients and their families

  • Empower patients so that they can have meaningful conversations with their healthcare providers

  • Advocate for best care throughout the UK

  • Campaign for early diagnosis

  • Raise awareness of lung cancer in non-smokers

Support

Visit our Patient Support page to see the wide range of support that we offer.

Empower

We maintain this website that provides a wealth of information.

We publish advice booklets and leaflets Our Publications.

Each year, we have a weekend conference, free to patients plus one, where they hear from and question ALK+ experts - Conference.

We produce ASK the Expert videos.

Advocate

We carry out surveys of our members to gather real-world data on all aspects of their diagnosis, treatment and care.

We attended conferences and meetings of lung cancer oncologists and nurses where we tell them about the support that we can provide for their patients.

We publish reports on best practice.

Campaign

We camapign to raise awareness of primary care providers and the general public that anyone with lungs can get lung cancer, irrespective of their age and smoking history.

Our core values

ALK Positive UK is committed to producing reliable, accurate and up to date content reflecting the best available research evidence, and best clinical practice. We aim to provide unbiased information free from any commercial conflicts of interest. 

We are welcoming in our approach and put the needs and interests of patients with ALK-positive lung cancer and their families first, treating them with the respect and empathy that they deserve.

We are passionate about our work – our passion is driven by a deep personal connection to ALK-positive lung cancer which means we are highly committed 
and determined.

We always act with professionalism and integrity and our activities are based on the best available evidence.

ALK 2023 - What we did

Learn about what we did in 2023

ALK 2023 - Our Impact

Learn about the impact we made in 2023

ALK Positive Lung Cancer UK is a proud member of the following organisations

Cancer 52 Logo
LCAM Coalition Logo
ODLC Logo
Euro Lung Foundation Logo
Advanced Cancers Coalition Logo
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Are you a Health Care Professional?

Professor Sanjay Popat, Consultant Medical Oncologist, The Royal Marsden Hospital, says "Learn about the charity and how it can support your patients".

How you can help with gradient

Learn how we provide help and support

Whether you need help and support, want to fundraise for our charity, or make a donation, you'll get all the information you need here.

Meet The Team CTA

Meet Our Team

We are a community from different backgrounds and walks of life, each with our own individual story.

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ALK Positive Lung Cancer (UK) is committed to producing reliable, accurate and up-to-date content reflecting the best available research evidence and best clinical practice. We aim to provide unbiased information free from any commercial conflicts of interest.

ALK Positive Lung Cancer (UK) is a registered charity in England and Wales ((1181171) and Scotland (SC053692).  The registered office is at 1 Ethley Drive, Raglan, Monmouthshire, NP15 2FD.

The content of this website is for information only and should not be used for the diagnosis or treatment of medical conditions.  We are unable to offer specific medical advice and, if you are worried about any symptoms, you should consult your doctor.​​

No part of this publication may be reproduced or tansmitted in any form or by any means, electronically, mechanically or manually without permission in writing of ALK Positive Lung Cancer (UK).

Copyright © 2025 ALK Positive UK

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