What we do

ALK Positive Lung Cancer (UK) is a registered charity established by patients and their families and friends. Our purpose is to extend the overall survival and quality of life of ALK-positive lung cancer patients across the UK.

We do this through support, empowerment and advocacy.

We have an active Facebook group for patients, family and carers where experiences can be shared and where mutual support can be given and received. We hold regular forum meetings throughout the UK that all of our members can attend. We share information across our social media pages and we regularly consult with relevant authoritative bodies on the status of ALK+ lung cancer in the UK.  We do not offer medical advice.

Our aims

ALK Lungs.png

AIM #1

To provide an information resource for UK ALK-positive lung cancer patients and provide access to information about the latest developments and clinical trials.

ALK Lungs.png

AIM #4

To liaise with and influence decision makers such as NICE, NHS and DVLA.

ALK Lungs.png

AIM #2

To identify and locate UK ALK-positive patients and offer support and guidance on the location of UK ALK+ specialists and services.

ALK Lungs.png

AIM #5

To liaise with relevant organisations, in particular the Roy Castle Lung Cancer Foundation and the pharmaceutical industry.

ALK Lungs.png

AIM #3

To raise awareness of ALK-positive lung cancer, particularly among medical professionals, so as to promote the best treatment for patients.

ALK Lungs.png

AIM #6

To raise funds to advance these aims.

Read a report about the role of our group in supporting and educating patients.

Read our latest newsletter

London Forum.jpg
Birmingham Forum 2019.jpg

Read about our Patient Forums

Read an Extract of the Trustees' Report for 2020

London Forum 2020.jpg