News and Views
A round up of news and views impacting the lives of people affected by ALK-positive lung cancer
Social Media Award Finalist
National recoginition for the ALL YOU NEED IS LUNGS campaign produced jointly by ALK Positive UK, EGFR Positive UK and Ruth Straus Foundation.
The campaign, which featured ALK-positive and EGFR-positive patients telling their own stories openly and honestly, was a finalist in the best charity campaign category.
Patient Conference
Our 4th Patient Conference, attended by 190 people affected by ALK-positive lung cancer, both patients and carers, has just ended and we have received very positive feedback, including
"Thank you for a wonderful conference and a wonderful opportunity to meet other people in the same boat. This was very professionally organised and run and I was very impressed. This was my first attendance".
Videos of all sessions will shortly be on the website.
Chief Executive Officer Appointed
The charity is delighted to announce the appointment of Lynsey Conway as its Chief Executor Officer. Lynsey brings 20 years experience in the lung cancer arena and her appointment is an important step in the development of the charity.
Lynsey said, " I am delighted to have joined this vibrant charity and hope that my experience and knowledge will contribute to its development".
Hardship Fund
1 in 4 of our members living with ALK-positive lung cancer report that they are experiencing significant financial hardship as a result of their diagnosis.
The charity is pleased to announce the launch of the Brenda Cobb Hardship Fund which is financed by Brenda's son, Callum. In fact, within 2 days, we made the first grant. Contact us, if you feel that you could do with some help.
Frequency of Head MRIs
3 in 5 ALK-positive patients are likely to develop brain metastases (tumours) within 3 years. The charity considers that 6-monthly MRI scans should be carried out before symptoms occur, so that metastases can be treated when they are small and few in number.
Our Abstract calling for a national protocol has been selected for display at the United Kingdom Lung Cancer Coalition annual conference
