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Our Publications

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Characturistics of a UK    ALK-positive patient

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Questions to ask your healthcare providers

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Living with ALk-positive

lung cancer

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DVLA rules about driving and brain tumours

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NHS rules about extended treatment breaks

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Some common side effects experience by aptients

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Early Diagnosis Campaign

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Questions to ask at progression

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How we support patients and their families

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Advice on Do Not Resuscitate Orders

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Advice on travel insurance

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How patients can share decision making

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What we did in 2025

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Our Impact in 2025

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Frequency of

Brain MRIs​

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Information about ALK+LC  Doctors' leaflet

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Advice on seeking a second opinion

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Advice on how to complain to the NHS

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The need for national guidelines

We are proud to be part of the PIF Tick accreditation programme. This means that, wherever you see the PIF Tick logo on one of our publications, the information has undergone a rigorous review process, ensuring it is accurate, trustworthy and provides accessible health information.

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We welcome feedback on our documents and are always keen to improve our resources. If you have any comments or suggestions, please share them with us by email or using the Contact US facility.

"Hoffwn ddiolch i chi am bopeth yr ydych yn ei wneud i ddarparu cefnogaeth i'r gymuned ALK-positif. Cymerodd fy mam lawer iawn o werth a chysur o'ch gweithgareddau ar-lein lle bu'n ymgysylltu'n rheolaidd ag eraill. Roedd yn teimlo bod y wybodaeth a rennir yn hynod fuddiol a darllenodd yn ddiwyd i sicrhau ei bod yn aros yn wybodus."

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